First, well we MOVED back to the states! No more overseas tours until both girls are over the age of 6, so I'm sure we will be in Arizona for a while. So far Aaron loves his job & up until a few wks ago I loved our new house/Arizona... up until Libby got stung by a scorpion and that experience was pure HELL for the both of us... and well the fear & terror I feel every single day that my girls might get stung again is making it harder for me to relax & love our new place. We moved to a really nice neighborhood though, and have a pretty big two story house that I love, and life is starting to feel a tiny bit like life should feel.
Over the past few months I started having some weird and scary symptoms, so I went to the dr which then had an urgent MRI done, then spent the a couple days in the hospital because I started to loose vision in my right eye & I got diagnosed with a Psuedo Tumor ( I was like wtf a fake tumor!? And they all said no not fake, your body/brain thinks there is one there and gives actual symptoms. It was nuts)(I prefer fake tumor over real one though thats for sure!) Anyway, along with my fake-ish tumor, I also had spontaneous CSF leak, which caused my pressure in my spinal fluid to go super high, and I had to have a blood patch done after the spinal tap they did a few days prior. It was SUPER painful, But the headaches are all gone, and there is NOTHING worse to lay you down than a spinal headache. I felt like my head was going to explode, it was super painful.... but alas most my crazy symptoms are gone! They think because my labor/delivery with Presley was so traumatic that thats where my problems stemmed from. I have to see a Neuro-Opthamologist in the beginning of January, because the vision in my right eye hasn't improved, but I'm hoping that is fixable! I feel VERY blessed that of all the things that could have been wrong with me, that loss of vision in my right eye is all I have :) It was a scary week wondering what was wrong with me, and I was scared of all the morbid things. I always worry about loosing my girls, but never think of myself, so it was scary to think I might not be here to watch them grow up. I pray no one ever feels that fear or pain.
The GIRLS :) MY GIRLS :) (I still find such satisfaction in that small sentence) Presley is now 6 months old (WHERE DID THE TIME GO!!??!) and is getting super adorable and less cranky/colicky. She still cries about 90% of the day, but thats an improvement, so I will take it! She has quadrupled her birth weight (yeah little mama!!) not chunky or huge by any means, but huge to us. She still has some serious reflux issues and pukes A LOT, and that is mainly the reason why she is so cranky all the time. Poor thing, we don't blame her! She was switched to Neocate, a prescription formula, and a reflux med switch that has made a noticable difference. She also has her MRI that's coming up in January, but the GI was pushing for an earlier one, so we will see if it's earlier or not. She is having tiny seizures here and there, where she just goes blank for about a minute, so that is one concern. I just pray it's something that can be fixed with meds, and am really trying hard to not stress/worry about the possible Sturge Weber Syndrome diagnoses that they think she has. Sigh, I guess we will cross that road when we get to it. It's not like a diagnoses is going to make me love her any less. She has developmental delays, and just barely rolled over a few weeks ago! She can't roll from back to belly, but she did go from belly to back!! She's awesome :)
Libby- She will be 18 months next week and has changed SO much just in the time we have moved home from Guam to here. She is SO smart, and gets smarter/funnier by the day. She is SO close to walking we just know it, and I'm sure it will be soon, or at least we hope so! She is cruising while furniture walking and will take about 6-7 steps to Aaron or I before she crashes. It's SO cute :) She doesn't talk much, but she does have a few words beside Mama, Dada,. She says Hi, Hello, Baby, So pretty that sounds like “so pwettty”, kiss, No, Yes, and the cutest thing is that we say “I love you Libby” all the time to her, and she has recently started saying “you mama” or “you dada” every so often after we tell her we love her. It's precious. One of my favorite Mama moments was the other day when she bent down and kissed Presley on the cheek and said “you baby”. If that doesn't melt your heart, I don't know what will. She has the sweetest spirit. She may not be doing some developmental things, but she was recently re-evaluated by EI services, and the PT said she didn't qualify because she wasn't far enough behind anymore :) YAY!! She also said that Libby is doing some things WAY ahead of 17 1/2 month olds and said she is super smart.. but we already knew that right :) It's always nice to hear from a Dr/therapist say that you are doing an amazing job parenting, and that we are great parents. With both the girls' delays, it's hard to not wonder if I am doing it right sometimes, so their recognition that I am, well it's nice. She isn't really eating a whole lot more since I last posted, but she is trying more things so her gagging has slowed down a lot and her texture aversion is getting better we think! However her GI wants her to have a MRI on her spine soon because she still can't poop on her own without meds, and her swallow study test is on January 12. She is slowly getting better, and while it's not as fast as others would like, it's on Libby's time, and we are use to that, so we are happy with the improvements. Her smile can make my day instantly better even if it's been horrible, and my girls are my whole world. I am SO blessed to have them and their daddy in my life.
That is my small update :) My New Years Resolution is to blog more, so I hope to be more active in the blogging world in the next coming year, because I have realized its very theraputic :) Huge Photo blog to come soon too I promise. While I have been slacking in the blogging world, don't you all worry, I still take TONS of pics :)
0 comments:
Post a Comment