Update on Presley

Update On Presley-

It's day 6, or Saturday, June 11. She was taken off the vent on Tuesday afternoon & has been doing great on the vapotherm since. She is down to 3 liters & @ 21%, so breathing wise, she is doing great! She has had a few apnea episodes, but that is common in 29 wkers and we're hopeful she grows out of them real quick because man are they scary!

I got to hold her on Wednesday & it was absolutely amazing! We haven't been able to hold her since then, because she still has her umbilical line in.. but once that comes out, we will be able to hold her! They pulled out one of her umbilical lines yesterday, but didn't pull out the last one because they weren't able to place a PIC line & were going to give her a tiny break and try to put the pic in again today. Well now they aren't going to put one in or pull her line yet, because they are putting her back on IV nutrition. The reason she is getting another IV & going back on IV nutrition is because they are stopping her feeds (she was up to 4ml of breastmilk every 3hrs) because she has to go on meds that require no feeds. It breaks my heart because we asked if she would be hungry & if it would bother her, and they said they would try to make her as comfortable as possible. It's things like this that really make me sad & I just wish she didn't have to go through all this & be in pain.

The reason for the Medicine & the stopping of feeds, is because her PDA still hasn't closed & they now think that medicine is the best option to help close it. We will know in 2 days if it works or not. Please pray it works! If her EKG comes back on Monday showing no change, She will be med evac'd to Hawaii to have surgery to close it. At first they thought that it would close on it's own, it hasn't & hasn't shown any change or improvement, so now they are going to try the meds. There are a bunch of risks they have to tell you before they give them, and man those risks are so daunting. Libby never had this problem, so we never had to deal with this, and it's all pretty scary. If she has to go to Hawaii to get surgery, the 4 of us will all be med evac'd with her & we would all stay there for the rest of her NICU stay. Presley's doctors are all very hopeful that the meds will work, so we are trying to be just as hopeful too.

When Presley first came into the NICU, she was in the very very back left corner, and for all our friends & family that don't know, the back of the NICU is reserved for the sickest/youngest babies. Yesterday they moved her isolette up to almost the middle of the nicu :) Aaron & I were so surprised that when we came to visit her yesterday, we both walked right past her lol. It's nice to not be all the way in the back anymore & we are super excited she's moving on up!

That's basically all the updates in a nutshell, I will post again when I have more updates. Again, thank you to everyone who is praying for Presley. Aaron & I appreciate every kind word that is said to us, and we truly believe every prayer counts.

Oh & we keep getting people asking if we have an address so that we can get things sent to us..

Stork's Nest
c/o Aaron & Brook Parker
PSC 482
FPO, AP 96362

and a phone number to reach us on if you are here in Okinawa, we are at the West Pac Storks Nest on Lester, the number is 645-3541 room117
Our vonage is off right now, but we did get Magic Jack, so our stateside peeps can contact us with this number at 801-872-0590