Update on our Sweet P

First off, Presley is now 1wk 1 day old (where does the time go!?), and has absolutely captured our hearts and we just love her soooo much. She already has quite the personality and even though she is super tiny, she is pretty feisty. She gets awnry whenever one of the nurses messes with her cords, or has to get vitals, but as soon as either Aaron or I touch her tiny little hand, she calms right down. She has quite the set of lungs on her, and I can hear her crying when I'm at the front of the NICU washing my hands to go in, I KNOW it's Presley. She may be small, but she will be heard lol. She will start fussing and the nurse will go back to check on her, and then she will stop as soon as they get to her, she just wanted some company :) She is super sweet, and I can't wait to just cuddle her, and she has one of those faces that just make you want to love on her. We've even caught her smile a time or two, and it's just precious.

I got to change her diaper for the first time today :) I love that we are finally being able to do some hands on stuff with her. That is one of the things I struggle with most with, is the part where I can't just hold her when I want to (I haven't held her since the first time, and that was a week ago.)I can't just touch her when I want to, and I hate that I have to ask someone for permission before I can touch my own child. It physically just hurts me and breaks my heart in two when she cries, and I can't pick her up to kiss her & comfort her. It's rough. So I was SUPER excited to change her diaper for the first time :)

She wore her first bow last night after they gave her a bath, and she looked SOOO cute! We've just been using our point & shoot camera this whole time since we didn't want to use the flash on her.. and Aaron has been bugging me on not using the nice camera on her... well when they put on the bow, I just HAD to break out the SLR and took a few :) I have to say, she is absolutely beautiful in my eyes. It's like she knew she had a bow in, because she even smiled after they put it on her.

Okay on to the medical stuff..
*First off, her PDA-- she has now finished the meds for it, and they did the EKG today. They sent the results off to the cardiologist in Hawaii, and we won't know the results until tomorrow. Talk about making us antsy.. Aaron & I are NOT enjoying the wait, but we are trying to be as hopeful as possible. We would LOVE for them to tell us it is closed tomorrow... One of her Neos, Dr. Winters, said that if it is smaller, they will just let it be & watch it closely. If it hasn't changed though, she says they will try just one more round of meds, and then if that doesn't work, she will be med evacing Presley to Hawaii for surgery, that or if she starts becoming symptomatic then they will send her then too. We of course are all hoping for the best, but if sweet baby girl has to have surgery and that is what is best for her, then we will go to Hawaii. (oh & for the few people that asked What a PDA is.. it's basically a tiny hole in her heart. Every baby has one, but when they are born it usually closes.. it's very common in early preemies.)

* Her PICC line was successfully put in today!! (YAY for a one stick success!) This also means that her IV line was pulled out, and so was her umbilical line. Which drumroll... this means we FINALLY will be able to hold her!! I'm actually on my way out the door as soon as I get done writing this update to go see her & hopefully hold her!! Aaron is super excited too, because he will finally be able to hold her as well. We also get to start doing Kangaroo care too.

*Since she is finished with the meds for her PDA, she started feeds again today! She is on 1 & a half mls of breast milk. It sucks that they have to start her feeds all the way back at the beginning, but because she is at high risk for NEC, they have to start slow.

* She is down to 2.5 liters & at 21% on her Vapotherm & is doing fantastic with this! They are slowly weaning her off, and this makes us SOO happy :D

* Her 3rd head ultrasound came back normal today, which is always nice to hear :) Thankful for NO brain bleeds! Lol to Tiffany<----- just in case she reads this half asleep again & posts an update. Jk, I love ya girl! That basically sums it up for updates.. I will update again tomorrow when we know the results of her EKG.